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Paralysis caused by Spinal Cord Injury
Medical Information- Organizations- Services- Resources 2002

NOTE: 08.01.04 The Paralinks crew has been putting at lot of time and energy into other aspects of the Paralinks Web Site and consequently this page has been sorely neglected.

However, to your benefit, we have found a site that is, well, here is what Matthew Ginop says about it: Your one stop site for Spinal Cord Injury information. Paralinks agrees with this description and will begin dismantling this Paralinks page and direct you to the

You will find a lot of information about Spinal Cord Injury here!

These listings below are still relevant, Paralinks will be checking each one and removing the outdated sites shortly.


Spinal Cord Society The first International Organization For Cure Research & Treatment of Spinal Cord Injury Paralysis & Related Problems - Founded in 1978 by Doctor Charles Carson, paralyzed in a light airplane crash. As a scientific researcher, Dr. Carson was astounded and dismayed that no one, nobody, was seriously researching Spinal Cord Regeneration.  If you are interested in, or even harboring the thought of, walking again, you owe it to yourself to join and support the SCS. The most outspoken organization into getting us paralyzed folks walking again! 

Spinal Cord Injury Network International Is a non-profit organization dedicated to facilitating access to quality health care by providing information and referral services to spinal-cord-injured individuals and their families. You may contact us through our toll-free phone number 1-800-548-2673

Cure Paralysis Home Page The Original Web Site for the Advancement of the Cure for Spinal Cord Paralysis.

The Mike Utley Foundation is dedicated to finding a cure for spinal cord injuries. It is committed to providing financial support of selected research, rehabilitation and education programs on spinal cord injuries. It is further committed to provide motivational and emotional support for individuals who have been disabled with such injuries.

Heidi Van Arnem Foundation  Our Mission: To find a cure for spinal cord injury as soon as possible. The Heidi Van Arnem Foundation was founded in 1992 to help find a cure for paralysis. To accomplish this goal, we organize socially conscious fundraising events. The proceeds from these events are given to existing research facilities active in developing a cure for paralysis caused by spinal cord injury. Funding comes solely from individuals and corporations in the form of donations and sponsorship of special events.

National Spinal Cord Injury Association The mission of the National Spinal Cord Injury Association is to enable people with SCI to make choices and take actions to achieve their highest level of independence and personal fulfillment.

American Association of Spinal Cord Injury Nurses  The American Association of Spinal Cord Nurses (AASCIN) is dedicated to promoting quality care for individuals with Spinal Cord Impairment (SCI) 75-20 Astoria Blvd., Jackson Heights, NY 11370 Tel: 718-803-3782

Pregnancy Mothering  and Spinal Cord Injured Women

Jim Lubin hosts a  directory of disability resources on the internet.


The Wheelchair Underground Our purpose of  is to educate our friends on what's hot and what's not in wheelchairs today, and to do so in a honest, hip, and witty way, much like motorcycle or car enthusiast publications. September 6th 1998

The Spinal Cord Injury Resource Center  A vast amount of information helping to explain basic anatomy, physiology, and the complications resulting from a spinal cord injury. This site has many great illustrations of the spinal cord, and lots of statistics, easy to read and understand.

Brejcha Personal and Disability Resource Site ....Lot's of information on this site!

Spinalcord injury information network:  Provides a comprehensive and organized source of Spinal Cord Injury Information and Resources from recognized centers, organizations, researchers and educators. Promotes  interaction among individuals with SCI, researchers and others. Links to other disability-related Web sites.

Northwest Regional Spinal Cord Injury System All the information listed here: Taking Care of Pressure Sores ... Maintaining Healthy Skin (Part I) ... Maintaining Healthy Skin (Part II) ...Taking Care of Your Bowels: The Basics  Taking Care of Your Bowels: Ensuring Success Urological Tests ... Bladder Management Urinary Tract Infections: Intermittent Catheterization Urinary Tract Infections: Indwelling (Foley) Catheter....

SCI Information web site Phil Klebine

Scott Biehler  Paraplegic, has co-written a very informative book concerning health issues and paralysis. 

Information & Services & News Flashes

Recovery Research Update Steven A. Stiens, MD, is an assistant professor in the UW Department of Rehabilitation Medicine and a physiatrist at the Seattle Veterans Affairs Medical Center. He also has T2-level paraplegia, "so I have an ongoing personal interest in regeneration and recovery...and my patients are always interested in it," Stiens said.

Wheeled Mobility Center & Whrilwind Women  International Wheelchair Building Project of the Wheeled Mobility Center at San Francisco State University.  Building Wheelchairs... Creating Opportunities...

Wheels For Humanity   "Over the last three months Wheels For Humanity volunteers in North Hollywood have refurbished over 300 wheelchairs. In the past eighteen months 987 Lives have been Resurrected with a gift of a Wheelchair. 140 in Guatemala, 96 in the Dominican Republic, 16 in Mexico, 218 in Vietnam, 66 in the Ukraine, 102 in Costa Rica, 12 in Cameroon Africa, 12 in Haiti, 30 in Rwanda, 218 in Nicaragua, 50 to Warsaw Poland, 1 to Bombay India, 10 to a refugee hospital camp in Dagestan Chechnya, 10 to an orphanage outside Sarajevo Bosnia, 6 to Argentina, 3 to El Salvador."

 "When Christopher Reeve promises he'll walk away from his wheelchair one day, you might think he's talking comic-book reality. "But the fact is that scientists are learning how to help the central nervous system repair itself.''  

Other than USA

Canada  Canadian Paraplegic Association--Association canadienne des paraplegiques Our mission is to assist persons with spinal cord injuries and other physical disabilities to achieve independence, self-reliance and full community participation.

CORD  Collaboration On Repair Discoveries, is an interactive group of research laboratories at The University of British Columbia. We are dedicated to the study of the developing and adult nervous system and its repair after injury or disease.

The Spinal Cord Injury Treatment Center Society Our motto, "Never Say... Never", remains the driving force behind our organization. The society promotes and financially supports applied research, bringing state-of-the-art technology and research to Northern Alberta. Currently, the Centre is not a building or facility, it is people - people committed to improving the quality of life of people with spinal cord injuries.


England SPINAL INJURIES ASSOCIATION: Moving Forward After Paralysis. London England

Denmark: Information fra Paraplegikerkredsen

Paralinks: Who we are is a loose collection of wheelchair users dedicated to providing every conceivable bit and byte of information available to those of us living with SCI in order to improve our lives in every way, no less! Paralinks Established Spring 1996 

We are looking for folks who would like to research and data mine for Paralinks