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More Than 
30 People Become Paralyzed Every Day

 

Letters & Feedback Page
December 1999


To: garyis@paralinks.net
From: "Tim Lambeth" <tlamb@atlascomm.net>
Subject: chatting with other SCI or their sweeties or their families

I am not SCI but I love someone who is c4=c5 complete!  Yes, I know, extremely nuts of me!  Anyway, I work for an Independent Living Center taking care of my friend 42 hours a week in my home.  The Division of Aging here in MO helps out on weekdays mornings.  I appreciate any helpful info that you can send also chatting with other SCI or their sweeties or their families.  I have two little girls that love my sweetie too.  He is 35, has a great attitude, goes to church, helps with a children's class,  Is 3 hours away from an associate degree in Business and Management,  He wants to fish and move to warm, warm, Arizona someday.  He has a power wheelchair and is unable to transfer right now.


From: Riptide105@aol.com
Date: Thu, 4 Nov 1999
Subject: Question about telephones for paralyzed folks
To: garyis@paralinks.net

Hi, My name is Howard Hunichen. I have a dear friend who has been paralyzed since 1991. He has minimal use of his Left hand. He is in a nursing home in a hospital bed. To top it off he is blind. I am trying to install a phone system in his room in the home. Unfortunately; the nurses won't take time to pick up a phone for a resident. I was wondering if you or someone you know might have some kind of solution for this or maybe a designer of phone systems for this purpose. If so you will be a great help for this man who is 85 years of age. He was also one of the Original Little Rascals in the OUR GANG comedies. Thank you and God Bless


From: sherimc@uswest.net
Date: Sun, 17 Oct 1999 
To: garys@paralinks.net
Subject: Re: Flu virus and paralysis

Hello, my name is Sheri, and I am a paraplegic. T12. But, I was not in a accident or fall, or anything like that, In about 1992 or 1993 I came down with a flu virus. In 1994, I became paralyzed. The doctor said some how the virus got in my spine and damaged it. It was so hard to deal with at the time, you just don't become paralyze from a flu virus, but I did. I just want to let you know about my story. I am fine now, I deal with very well. Some days are good and some days are not. I think everybody goes through that some times. I just want to let you know, that I think you are doing a great job with Paralinks.


NEW Date: Sat, 09 Oct 1999 13:00:12 -0500
From: Laurie Stockman <stockman@281.com>
To: garyis@paralinks.net
Subject: ASSISTANCE

I am creating a support group with the Austin Center for Attitudinal Healing for SCI adolescent clients and their families. Would greatly appreciate any information or suggestions you could contribute to the process. I became interested in SCI support after my son's accident and found no such support in our community (AUSTIN, TX). I anxiously await your response and appreciate your time and efforts in assisting me in my journey.

Respectfully, Laurie Ann Pruser-Stockman P.O. Box 575 Spicewood, TX 78669-0575


New From: Kennet101@aol.com
Date: Sun, 19 September 1999
Subject: My personal accomplishment
To: link@paralinks.net

I was shot in a reverse drive by at age 19 -I had been signed up for an automotive repair school in Phoenix, I had about one month to go before starting my new life!

After rehab and a lot of ups and downs I realized, for my own peace of mind I needed to accomplish my original goal-12 years later- I did go back to the automotive school I had initially intended to attend-after being a school for 32 years, I am the first paraplegic to attempt and complete the required courses to be an automotive technician. personally it was a great "win", which definitely turned my life around.

I am happily married to a beautiful woman, who knows everything I've dealt with and will deal with. I am not in the automotive field now because my "position" as I've been told, does not allow me to be an achieving individual in any dealership in this area-although my resume begs to differ. I have had the great fortune to be a part of a couple of Independent Jaguar repair shops and have learned a lot. I am now in a full time position which allows me to "pay the bills", but I would like to be a part of the field I have much knowledge and experience with.

I am happy and will continue to go against the odds if that's what this world has in store for me, and although sometimes frustrating, maddening, and sometimes just plain hard, I refuse to let anyone or anything take my personal power from me!!! -- Owen


From: "Marcus Edwards" marcus@our-town.com
To: <garyis@paralinks.net>
Subject:  flying
Date: Sun, 12 Sep 1999 16:41:44 -0500

Hi, I am a C-3-4 quadriplegic (Almost six years), I do have function below C4, but I am unable to transfer and I use a powerchair.  I am curious about flying, is there no way to remain in my chair and fly?  Because I use a tilt and recline system I would not be able to fly long distances without considerable assistance.  It is my understanding that there are no tie downs on aeroplanes.  If this is true I suppose we are just going to "set" around until somebody does something.  Does this lack of accessibility aggravate anybody else? Marcus


From: Greg McMahon goneridn@handcyclequest.com
To: garyis@paralinks.net
Date: Thu, 22 Jul 1999
Subject: New Handcyling Times Web Site...

Well, it's finally here...The new Handcycling Times web site is online.  There is more and more being added each week.  I'd love it if everyone would stop by and check it out.  This site is here for each of you. The new address is www.handcyclequest.com/handcycle.html

To encourage everyone to sign in and give imput, I'll will be giving away the greatest mutli-tool out there.  The Alein Tool by Topeak.  Even the name is cool. A drawing will be held at the end of August from all the guest book entries that I receive between now and then.  The odds are pretty good.  It is a great tool, I wouldn't ride without it.  You can enter by simply filling out the new guest book section.  Please look around the site and give me input on what you think that it needs. Thanks and I hope to hear from you all soon...


Date: Mon, 31 May 1999
From: "F. Alexander Brejcha" abrejcha@netreach.net
To: garyis@paralinks.net
Subject: Hawking "news" flash

Dear Mr. Schooley: I found your magazine and added it to the Magazines page of my "Personal and Disability Resource Site" at  (reviewed in Yahoo Internet Life  magazine's 'Touched by the Web' section and the Philadelphia   Daily News  'Cyberia' column). My compliments.

However, I wanted to react to the "news flash" (Click here for the story) about Hawking's exo-skeleton. After a moment of major intrigue (I am a professional writer of fiction and non-fiction) I realized it was a spoof. Now I enjoy satire and a good spoof as much as anyone with a sense of humor, but I was very bothered by the inclusion of such an item as "news".

Just a quick comment. I do think your site is excellent though, and I will return. Best regards, Alex.  Alexander Brejcha


Training Goals: Check out the muscles! To add mass but to keep my symmetry and proportion. To come into each show as ripped as possible. To improve from one show to the next by listening to the advice I gather from the judges on how I could have done better.

I am a T-11 Paraplegic due to a car accident in 1982. I have been working out at Golds Gym in Marysville Washington since October
1996. Although I did not join the Gym with the goal of doing bodybuilding contests, I have had the opportunity to compete in the
following bodybuilding competitions. Greg Elliott


Date: Wed, 05 May 1999
From: Mike Augspurger oneoffti@javanet.com
Organization: One Off Titanium
To: garyis@paralinks.net
Subject: ONE-OFF handcycle

Hi, Have you seen our new handcycle design? We were in last month's New Mobility magazine. Bob Vogel has one and wrote about it.  We also have an article by wheelchair athlete Terry Ball titled, "My first mountain bike race" and a video showing our handcycle in action. Set me know if I should send you our stuff.    -Mike Augspurger


From: "Nancy Dontrich" dontrich@cwent.com
To: <garyis@paralinks.net>
Subject: CTS
Date: Fri, 19 Feb 1999

Why not do a story about carpel tunnel syndrom, and wheelchair users. I am and have been very active. I had no knowledge about what I was doing to my hands over the years, and the sort of things I could do to prevent/minimize injury.


 From: Juliatanto@aol.com
Date: Sat, 15 May 1999 00:52:22 EDT
Subject: My son
To: garyis@paralinks.net

my son was paralyzed on may 28, 1989 in a swimming accident, the doctors told me that he would be paralyzed from the chest down, I was just thankful that he was alive and I trusted in God, that he would show me how to take care of him. He had a Baclifen put in at St Luke's hospital in 1991, that is to help muscle spasms.  He has finished high school and is going to college hoping to become a computer programmer. He has had to drop out of college 3 times due to serious illness. I almost lost him in 1996 and the doctors to this day can't tell me what the problem was his lungs crystallized and other complications, With prayer and the grace of God he pulled through. We have been blessed and I am just so thankful that he is doing well. He is a wonderful son and I am just blessed to have him.


Date: Wed, 07 Apr 1999 17:06:33 -0500
From: Paul Gilmore lazarus@icon.net
To: garyis@paralinks.net
Subject: Sponsors?

Hello- I have a question that I was hoping you could help me with. I am a 42 year old paraplegic- T12/L1 since 1973. I recently have become involved in wheelchair fencing and will be participating in some international competitions within the next year. Are you aware of any disability organizations, medical supply companies, charitable organizations, etc. that sponsor athletes with disabilities? I would greatly appreciate any information or ideas. Thanks- Susan Gilmore

 

END NOTE: Paralinks is looking for partners, resources, financial assistance, sponsors, for help with publishing this popular & growing E-Zine.
Contact: Gary Schooley